Lewy Body Disease – a form of dementia second only to Alzheimer’s in numbers, yet few of us have ever heard its name.
It takes courage to face serious illness, whether it is you who are sick or someone you love. This is the story of two courageous people, Julie and Ken Sobol. Julie and Ken were writing partners as well as life partners, so it was natural that when Ken became caught up in the frightening and fatal fog of Lewy Body Disease, they decided to write about their experience with the disease together.
This is the story not just of a devastating illness, but of an amazing relationship. As Ken’s disease progresses and his symptoms worsen, his voice on the page dwindles. Julie continues the narration, sharing her sadness, frustration, and attempts to find the best care for her husband. Their chronicling of the ravages wrought by LBD is intelligent, insightful, enlightening, and often funny. It is—at heart—a love story.
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"Sheer grace under pressure … There's nothing maudlin; it's written to edify readers, not provide catharsis for the writers. Its qualities are dignity and respect - for everyone, for life. They began by providing alternate sections. When Ken deteriorated, Julie interviewed him. Eventually she carried on alone."
- Rick Salutin, The Toronto Star
"If you have ever cared for someone you loved, as they were dying, or if you have aging parents who now need your care and assistance, or if you have accepted that you may be dealing with some of these difficulties yourself, Love and Forgetting is a good guide." - Bookshelf Reviews blog
"With clarity and honesty, in a bold and intimate voice, the voice of Julie-and-Ken, this couple’s memoir certainly does raise awareness of LBD but, above all, it is a love story." - Buried in Print
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