Love and Forgetting: A Husband and Wife's Journey through Dementia

Love and Forgetting: A Husband and Wife's Journey through Dementia


By Julie Macfie Sobol & Ken Sobol


Lewy Body Disease – a form of dementia second only to Alzheimer’s in numbers, yet few of us have ever heard its name.

It takes courage to face serious illness, whether it is you who are sick or someone you love. This is the story of two courageous people, Julie and Ken Sobol. Julie and Ken were writing partners as well as life partners, so it was natural that when Ken became caught up in the frightening and fatal fog of Lewy Body Disease, they decided to write about their experience with the disease together. 

This is the story not just of a devastating illness, but of an amazing relationship. As Ken’s disease progresses and his symptoms worsen, his voice on the page dwindles. Julie continues the narration, sharing her sadness, frustration, and attempts to find the best care for her husband. Their chronicling of the ravages wrought by LBD is intelligent, insightful, enlightening, and often funny. It is—at heart—a love story.

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About the Author

Julie Macfie Sobol and Ken Sobol met at Ohio’s Oberlin College in 1958. After marrying and living in New York, London, and Los Angeles, they and their three children moved to Canada in 1973. There Ken continued his Emmy-winning writing career with TVOntario and other networks, mainly in children's tv and documentaries.. He also authored several children’s books. Julie is a painter and musician who has worked as a piano teacher and accompanist. Her paintings hang in homes in Canada, the U.S., and England. Julie and Ken began writing together for magazines in the 1980s, and then went on to write two books of social history: Looking for Lake Erie and Lake Erie: A Pictorial History. Love and Forgetting began as a magazine piece about Lewy Body Dementia after Ken was diagnosed with the disease.  As his symptoms deepened, and their understanding of the disease increased in parallel, the article soon became a book. The couple was forced to find new ways to live and write together. Ken died on August 5, 2010, just three weeks after moving into a long-term care facility. Ken died in 2010. Julie, now a grandmother of six, continues to make her home in Toronto.

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Product Information

  • Release: September 23, 2013

  • $19.95 Paperback

  • 264 Pages

  • 5.5 x 8.5

  • Adult Nonfiction

  • ISBN: 9781927583180

Praise for Love and Forgetting

"Sheer grace under pressure … There's nothing maudlin; it's written to edify readers, not provide catharsis for the writers. Its qualities are dignity and respect - for everyone, for life. They began by providing alternate sections. When Ken deteriorated, Julie interviewed him. Eventually she carried on alone." 
- Rick Salutin, Toronto Star

"If you have ever cared for someone you loved, as they were dying, or if you have aging parents who now need your care and assistance, or if you have accepted that you may be dealing with some of these difficulties yourself, Love and Forgetting is a good guide." - Bookshelf Reviews blog

"With clarity and honesty, in a bold and intimate voice, the voice of Julie-and-Ken, this couple’s memoir certainly does raise awareness of LBD but, above all, it is a love story." - Buried in Print